It seems like I am always taking him to one place or another, but before yesterday's neurology appointment and EEG I can't really think of too much new going on! Lately he has been having weird episodes where he shakes, almost like he is cold, and it usually lasts about ten minutes or so. He is still completely aware of whats going on around him, but so far he has only done it in his high chair so it could also be a behavioral thing. The neurology department in st. louis now has a website patients can send videos to, so I guess I'm just going to see if I can get it on camera sometime. In the past 3 months it's maybe happened 6-8 times, so at first I didn't think much of it. We'll see I guess.
Last week I had mixed up the time we were supposed to go to see endocrinology and had a bit of a temporary meltdown afterwards :) For some reason I am suddenly struggling extra hard to remember appointments or double scheduling, and I NEVER get out the door on time anymore, so I ran to target today to buy a bunch of planner stuff. I ended up getting $68 worth of "organize my life" stuff, so I really hope it helps!
I've also been running all over SE Iowa the past few days trying to get a copy of Liam's medical records from every doctor. It's been such a hassle, nobody wants to give them to you! A lot of places tried telling me they'd just send them wherever I wanted them to go, but with all our specialists it's impossible to make sure every doctor gets every other doctors records. I just want a personal copy to keep with me so if someone didn't get records, mine can be copied. I did get his records from Burlington Pediatrics without a problem, which is really probably the most important one *besides neurology* but am really frustrated with everyone else!! Oh well, a tank and a half of gas later I have finally gotten most of them!
I think I have decided to send him to the developmental preschool next year. It's 5 days a week, all half days. I think if I sent him to "regular" preschool I'd be so uptight about making sure the teacher knew everything she needs to for him, I'd drive everyone nuts. I can't believe he will be in preschool in about 6 months!!!
I don't think Liam will mind too much if he has to share his website with another family member who has recently needed medical attention. Angus, our poor puggle, had his eyeball fall out a week or so ago. I am pleased to announce his eyeball removal surgery has been post-poned/cancelled because it seems to be doing much better. It's really cloudly and I don't think he can even see out of it, though! He keeps walking right past his treats if they are on the "bad" side. I'm just glad it's healed enough I don't gag every time I put his eye drops in!
Last week I had mixed up the time we were supposed to go to see endocrinology and had a bit of a temporary meltdown afterwards :) For some reason I am suddenly struggling extra hard to remember appointments or double scheduling, and I NEVER get out the door on time anymore, so I ran to target today to buy a bunch of planner stuff. I ended up getting $68 worth of "organize my life" stuff, so I really hope it helps!
I've also been running all over SE Iowa the past few days trying to get a copy of Liam's medical records from every doctor. It's been such a hassle, nobody wants to give them to you! A lot of places tried telling me they'd just send them wherever I wanted them to go, but with all our specialists it's impossible to make sure every doctor gets every other doctors records. I just want a personal copy to keep with me so if someone didn't get records, mine can be copied. I did get his records from Burlington Pediatrics without a problem, which is really probably the most important one *besides neurology* but am really frustrated with everyone else!! Oh well, a tank and a half of gas later I have finally gotten most of them!
I think I have decided to send him to the developmental preschool next year. It's 5 days a week, all half days. I think if I sent him to "regular" preschool I'd be so uptight about making sure the teacher knew everything she needs to for him, I'd drive everyone nuts. I can't believe he will be in preschool in about 6 months!!!
I don't think Liam will mind too much if he has to share his website with another family member who has recently needed medical attention. Angus, our poor puggle, had his eyeball fall out a week or so ago. I am pleased to announce his eyeball removal surgery has been post-poned/cancelled because it seems to be doing much better. It's really cloudly and I don't think he can even see out of it, though! He keeps walking right past his treats if they are on the "bad" side. I'm just glad it's healed enough I don't gag every time I put his eye drops in!
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