June 28, 2011

Lowering the seizure meds has seemed to be pretty helpful, he isn't as lethargic as often and when he is I think it is because he has learned that "spacing out" gets him out of stuff....The other day we thought maybe he was having some seizures at therapy, but then we realized he didn't do any spacing when he was having fun or if he had to work to keep his balance...so the little guy has learned a new way to trick us!  He hasn't had any reflux with the new dose either, so hopefully that stays that way.

He hasn't been weighed lately, but he has been eating like a pig so I'm betting he has gained...He ate dinner for a solid 45 minutes tonight, along with quite a few cheese-balls courtesy of Uncle Tyler and Aunt Erin!

I switched his eye doctors today, getting tired of hearing "He'll need glasses, but let's give it another 6 months" every time.  We go in a few weeks, so hopefully they will take care of at least his strabismus (one eye is slightly slower than the other focusing on something) and astigmatisms rather than telling us to wait.  Since it's only really noticeable to me in pictures, I hope I remember to take some with us!

We go on Thursday to have a camera put down my poor baby's nose to see if there's anything that would tell us why he doesn't seem to be able to breath out his nose.  Sounds like it's going to be awful...  They are also doing a test to test how his ear drum vibrates, at an office visit it didn't seem to very well, but less than a week later he had an ear infection which pretty much explains that away and I'm not too worried about it at all.

No comments:

Post a Comment